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At aloof 15 months old, Luke Hubert, of Limestone, was diagnosed with Duchenne Muscular Dystrophy, a ache characterized by accelerating beef bearing and weakness.
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For 13-year-old Luke, it's acquired his affection and diaphragm to weaken, and a year ago, he started application a ability wheelchair. He takes a medication alleged Emflaza to apathetic the progression of DMD, and aback drugs were introduced, activity assumption has added from mid-teens to mid- to early-20s.
In adjustment to advice pay for abundant hospital visits to and from the Cincinnati Children's Hospital every six months, medical bills, accessories and medication to advice abettor Luke, the County West Soccer Association captivated a shootout at the soccer fields abaft Limestone Middle School for $1 per try aftermost month.
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The alliance akin donations up to $300, and they aloft a absolute of $2,750 for the Luke Hubert Benefit.
On Oct. 21, at the Knights of Columbus in the Cameo Room, (187 S. Indiana Ave., Kankakee), the Huberts will be accepting a "fun-draiser" for Luke at 5 p.m. with food, drinks, music, a bashful bargain at 5:30 p.m. and a alive bargain at 8 p.m.
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"We accomplished out to Clay Matthews [of the Green Bay Packers] because he's a big adherent of the Cure Duchenne Foundation, and he donated an autographed jersey and football to be raffled off," said Kim Hubert, Luke's mom.
Among the added items to be auctioned off are White Sox tickets, Chicago Bears tickets, a active guitar from country music accompanist Mickey Gilley, a weeklong vacation to Fort Myers, Fla., and all-access accreditation for an absolute NASCAR chase weekend.
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There additionally will be a raffle for a banknote award-winning of $10,000 and after abate dollar amounts.
"The analysis was a adverse change in our lives, but it's additionally become a adventure that's taken us abounding places with abounding emotions," Kim said.
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"There are absolutely adamantine canicule that blister your affection and you accept to application it up and put it aback in to go on, but we're beholden for the angle we've been given. And I couldn't ask for anyone added solid than my husband, Todd. We apperceive that we accept to accumulate us able if we appetite to accumulate our assemblage strong."
Those who won't be able to appear abutting Saturday but still would like to accord to the Hubert Family, can do so by activity to any HomeStar Bank area in Kankakee County and accord to the annual name, "Luke Hubert Benefit."
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